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How One Woman With a Very Rare Disease Secured a Clinical Trial

Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide. Source: Read the original article on www.nytimes.com

By deepak · August 17, 2026 · 1 min read

Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide.

Source: Read the original article on www.nytimes.com